Terms & Conditions and Privacy Policy


This Privacy Policy is designed to tell you what will happen to the information you provide through this website or through any other form of communication with la Fondation Paralysie Cérébrale. This Privacy Policy also applies to our contractors. Please be sure to read this entire Privacy Policy before using this website or submitting personal information to us or our agents or contractors.

Personal information

This Privacy Policy concerns any personal information or sensitive information of yours which is provided to us.

Personal information is any information about an identified individual or an individual who is reasonably identifiable, whether the information is true or not and whether the information is recorded in a material form or not.

We may collect health information about participants in STEPtember that involve physical activity. We will collect, use or disclose sensitive information about you only as allowed by law, for example where we have received your consent to do so or the collection is required by law.

Your consent

By using this website or otherwise providing us directly, or through others, with your personal information, you agree with the terms of this Privacy Policy and consent to the collection, use, and disclosure of that information in accordance with the Law « Informatique et Libertés » du 6 janvier 1978 and other applicable privacy laws.

Passive information collection

We do not collect any personal information from a visitor to our site unless that visitor explicitly and intentionally provides it. If you are simply browsing our site, we do not gather any personal information about you.

How we collect your personal information

We collect personal information that is necessary for the event STEPtember. We collect them directly from you, when register to participate to STEPtember or make a donation.

What personal information do we collect and why?

The type of personal information we collect may include your name, age, date of birth, address, postcode, contact details, telephone numbers, email address, information on why you participate to STEPtember.

The personal information you provide us may be used for a number of purposes connected with our operations, which include to:

  • contact you
  • verify your identity
  • manage our relationship with you
  • address or respond to any requests from you
  • process any gifts or donations you make to us,
  • manage your participation
  • provide you with updates on our research and how your gifts or donations are helping la Fondation Paralysie Cérébrale

You always have the right to opt out of receiving such information. You may exercise that right by contacting us as set out below.

We will not use your information for purposes other than those described above unless we have your consent or as permitted by law.

Sharing your personal information

We do not provide or sell information about our visitors to vendors.

Does my personal information leave France?

We store data in data centres based in Australia, USA and the EU depending on our participant’s location.

Access and correction

You may request access to any of the personal information we hold about you by contacting us as specified below.

We will take all reasonable steps to ensure that the personal information we collect, use or disclose is accurate, complete and up to date. To ensure your personal information is accurate, please notify us of any errors or changes to your personal information and we will take appropriate steps to update or correct such information in our possession.

Storage and security

We take all reasonable precautions to safeguard your information from loss, misuse, unauthorised access, modification, disclosure or destruction. We may store your files in electronic or hard copy form (on our premises or stored offsite in secure facilities). We implement a range of physical and electronic security measures to protect the personal information that we hold, including, depending on the circumstances, electronic access controls (such as login and password protection), premises security and network firewalls.

You should keep in mind that no internet transmission is ever completely secure or error-free. In particular, emails sent to or from this website may not be secure.

Links to other websites

This website may contain links or references to other websites to which this Privacy Policy may not apply.  You should check their own privacy policies before providing your personal information.

Notifiable Data Breaches scheme

In the event of any loss or unauthorised access or disclosure of your personal information that is likely to result in serious harm to you, we will:

  • investigate, and
  • notify you and the Commission Nationale Informatiques & Libertés (CNIL) as soon as practicable,

in accordance with the Law “Informatique et Libertés”


If you have any questions or concerns about our collection, use or disclosure of personal information, or if you believe we have not complied with this Privacy Policy or the Law “Informatique et Libertés”, please contact us as set out below.  Our Privacy Officer will investigate the complaint and determine whether a breach has occurred and what action, if any, to take.

We will take any privacy complaint seriously and will aim to resolve any such complaint in a timely and efficient manner.

We expect our procedures will deal fairly and promptly with your complaint.  However, if you remain dissatisfied, you can also make a formal complaint with the Office of the Commission Nationale Informatiques & Libertés (CNIL) (which is the regulator responsible for privacy in France):

Commission Nationale Informatiques & Libertés (CNIL)
Complaints must be made in writing

Phone: +33 1 53 73 22 22

3 Place de Fontenoy

TSA 80715

75334 PARIS CEDEX 07 



How to contact us

For questions about access and corrections to personal information about you that we hold:

please contact  + 33 1 45 54 03 03


If you wish to exercise your right to opt out of receiving our marketing materials, or you have any questions or concerns about this Privacy Policy or our information practices, please contact us at:

Fondation Paralysie Cérébrale / La Fondation Motrice
Service RGPD
67 rue Vergniaud
75013 Paris




Changes to this Privacy Policy

Our Privacy Policy may change from time to time as updated on this website.  Before providing us with personal information, please check this Policy on our website for any changes.

This Privacy Policy was last updated on 20 July 2022


Wireless Head phones tombola

  1. Sign up for STEPtember and make a self donation by Monday, August 15, 2022, midnight CET.
  2. The result of the draw will be announced on social media as well as to the person drawn on Tuesday August 23, 2022.

48€ in 48 hours Draw

All participants in STEPtember 2022 who will raise more than €48 in 48 hours will enter the draw to win a connected watch.

The 48 hours begin Wednesday, September 14 at 10 a.m. – French time – and end Friday, September 16 at 10 a.m. – French time.

The result of the draw will be announced on social media as well as to the person by email.

Euro Match Day

From Thursday September 29, 2022 10am (French time) to Thursday September 29, 2022 midnight OR until the €10,000 envelope is over: all donations up to €150 will be matched by COGEFI.

For example, if you receive a donation of €50, your fundraising page will increase by €100 (€50 from your donor + €50 from COGEFI).

Donations over €150 will be matched up to €150. For example, if you receive a donation of €200, your fundraising page will increase by €350 (€200 from your donor + €150 from COGEFI).

Donations will no longer be matched once the €10,000 envelope is over.

UPDATE September 29, 2022

A generous anonymous donor added €10,000 to the envelope.

Rules remain the same but now the total of the envelope is €20,000!

louis et sa maman

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